Any Questions?

Signing up

The UKCTG makes it easy for people to register their interest in clinical trials, so that they can be contacted about relevant studies. The goal is to make it possible for anyone and everyone who wants to be involved in clinical trials to do so.

Every year, more than half a million people help the NHS improve healthcare and develop life-saving treatments by taking part in clinical trials. Yet researchers often find it hard to recruit enough participants for their studies. At the same time, many people who want to take part in trials don't know where to find information about them.

No – as above, many clinical trials struggle to recruit enough participants.

The UKCTG is a collaborative project, funded by the Department of Health, and coordinated by the Department’s research arm, the National Institute for Health Research (NIHR). The Health Research Authority (HRA,) which protects and promotes the interests of patients and the public in health research, has also approved the site.

Anybody over the age of 18 years old, from all ethnic backgrounds and cultures can sign up. You can also provide details of someone for whom you care, if you would like to be contacted about trials that you can then discuss with them.

No. Once you register your interest, your details will be regularly checked against appropriate trials. If a match is found, you will then be contacted in your preferred manner (by phone, email or letter). Detailed information will then be provided about the trial and you will have the opportunity to ask as many questions as you like. You can then decide whether or not you wish to take part and that process will involve further consultation with medical professionals and consent from you.

The UKCTG will help you to find trials that you can join, and learn more about the research in your local area or other parts of the UK. If you do then decide to take part in a trial, you will have the satisfaction of knowing you are helping to build the knowledge on which good medical care and treatment are based.

Your information is managed by a team working for the Department of Health. Only authorised staff will be able to see your information, such as those employed by the NHS, commercial organisations such as drug companies, or universities. All such staff are assessed and approved by signing up to our terms and conditions and data processing agreements and can only access information about you if they are conducting trials for which they have ethical approval and for which you may be suitable.

The UKCTG keeps your personal information private, secure, and confidential. Your information will only be available to approved researchers as described in the previous section. Any researcher accessing information about you will have been assessed in accordance with “Research in the NHS Human Resource (HR) Good Practice” guide and those accessing the medical information you have provided to UKCTG must follow the NHS Confidentiality Code of Practice and the Data Protection Act 1998. If you have questions or concerns, please view our Privacy Policy and Cookie Policy.

UKCTG contains lots of different types of studies that you could take part in. The service is designed to match people with appropriate research studies based on their health information and research interests. Current research includes: clinical trials of new drug treatments or existing drugs, non-drug treatments, surveys about what works in improving quality of life, finding diagnostic tools.

You will initially be asked a few basic questions about yourself or the person you would like to register. You may want to collect some information to help speed up your registration, such as contact details for your GP and your NHS number. Once you have registered, you can provide further information to improve your matching to studies.

There are the three steps to register for the service. It takes about 10 minutes to complete the basic information. Step 1: Register for an account with your existing email address and choose a password, which allows you to easily access your account in the future. Step 2: Fill in some basic information about yourself Step 3: Confirm your registration via email.

Yes, you can register someone else providing that to the best of your knowledge, the person you have registered has not expressed any reluctance to participate in the UKCTG and it is your opinion that registration is in their best interests. We recommend that you discuss participation with the participant, where possible. If you do register someone else, it will only ever be you who is contacted about trials relevant to them, and it will then be up to you to discuss this and take it further with them. To do this, you need to register yourself as a user or representative and then attach the profile of the person on whose behalf you are registering, to your own account.

Being matched

Once you have created your account, you will then be asked to provide some personal information. This includes your name, date of birth, contact details and some basic details about your health. The information will help to find studies that might be suitable for you.

Researchers can use the UKCTG to check if there are enough people who could take part in their study. This is called a feasibility search. When using it in this way, researchers can only see anonymised data relating to the number of people who fit their study criteria. This information does not identify any individual.

Researchers can use the UKCTG to check if there are enough people who could take part in their study. This is called a feasibility search. When using it in this way, researchers can only see anonymised data relating to the number of people who fit their study criteria. This information does not identify any individual.

In other cases, researchers running a study can see more detailed information, and use this to identify potential participants who match their study criteria.

You can update your information at any time. You only have to log in and provide your unique username and password through the website to make these changes.

This will depend on your circumstances and on the criteria for joining the studies listed in the UKCTG. As the service develops there will be more studies added. Please remember to complete your profile with as much information as possible, and update any changes to your circumstances, to maximise your chances of being recruited to a study.

When you initially register, we only ask a few essential questions. However, after you have completed that initial step and have an account, we recommend that you complete the 'Additional Questions' section. You can do this by clicking the link to 'edit profile details' on your UKCTG profile. You can then add further information about your health and preferences that will improve your chances of being matched to an appropriate study.

Seeing the studies

Some areas of the UK have more medical research taking place than others, and if you are willing to travel it may be easier to find a trial you can join. When registering, you can express your preferences and willingness to travel in your personal information on the form.

The status of a study can change quickly. If you received an email alert for a new study, but can’t see the study in your match list, it is possible that (a) the study has either been temporarily suspended or permanently closed or (b) the criteria used to match you (e.g. distance), have changed. This might be due to finding sufficient volunteers, or receiving a good response that will take time to process. Please don’t worry, you may not have missed out. If the study re-opens, the study team will still see you, and you will be able to view the study details in your account.

You can access your account and update your information page at any time by visiting the home page and logging in with your unique username and password. When you are logged in, you will see your page. You can update or edit your own information in your account profile page, or register someone else and maintain their information for them.

If you tick the box, the research team is aware that you are interested in joining their study. This means they will prioritise you for further checking of your medical records, held by your GP or hospital. If you haven't been contacted it probably means that despite being matched you didn't meet the inclusion criteria, after being checked further. New studies come on to the system every week, so please regularly login and check for your latest matches.

If you are matched to a study, this does not necessarily mean you are eligible to take part. Further checking of your medical records may be carried out to make sure you are suitable. If you are eligible, you may be contacted by the research team, and can then decide whether or not you want to take part.

If this hasn't arrived, please check your spam folder.

Your username is your email address and you can request a password reset from the website. To do this, click the “Need help logging in?” link on the Log In menu in the top right-hand corner of the screen, and follow the instructions provided. If you continue to experience login problems, please contact ukctg@nihr.ac.uk. who can confirm your username and issue a password reset.

Studies will be on the UKCTG if the researcher registered them initially either on ISRCTN.com or ClinicalTrials.gov, which are two publicly available trial registries in which researchers place details about their research.

Studies are very dynamic and details can change quickly.

The UKCTG aims to use the best plain English summaries available. In time we hope this will mean that a short clear summary is available on the website; currently however it is sometimes more useful to provide a link to a summary on a different site.

It may take several months before the results of a study are available. In any study record, go to the Trial Details tab and scroll down to the bottom of the page to the ‘Results Reports’ section in order to check whether results are available. You can also go back to the initial sources, ClinicalTrials.gov or ISRCTN.com.

The studies that are listed first are the ones that are recruiting and contain your keyword(s) in the most relevant fields (such as title or condition).

Talking to researchers

When you join the service, you can choose how you'd like to be contacted: by phone, letter or email.

You will either be contacted by a member of your healthcare team or a member of the team carrying out the research, who will explain the study to you. Our approved list of researchers will include those who work within the NHS, universities or commercial organisations such as drug companies.

Yes, you could be contacted by more than one study team. UKCTG will also record which studies you take part in.

After registration, it may be a while before you are contacted by a researcher. However, it is important you keep your study information up-to-date. The more current information you can provide, the easier it will be for researchers to find out whether you can participate in their study.

You will be contacted as and when there is a trial for which you are suitable. While this may take some time, just by signing up you are already helping to support researchers because they can see who is available for studies they are planning.

Taking part in research

No, you will never have to participate in a study unless you decide it is the right thing for you. You will have various chances to make this decision by using information provided on the website and when you discuss the opportunity with the study organiser and/or your own doctor.

It is a legal requirement for research studies to have specific approval to enrol people who lack capacity. If a study has this approval, then someone acting under a Lasting Power of Attorney for Health and Welfare can volunteer a person who lacks capacity for research as long as the decision is made in accordance with the person's best interests.

Other questions

You are free to withdraw your information at any time without giving a reason. If you decide that you no longer wish to remain on UKCTG please send an email to ukctg@nihr.ac.uk. Once you do this, all of your identifiable information will be removed and future researchers who are searching the registry will not be able to search for you. If you have taken part in a study but then withdraw from the UKCTG, any information about you held by the study team will be kept in accordance with the relevant legislation.

For general questions or comments, please visit the contact us page. Your suggestions about how we can improve this resource are always welcome.

No, not yet. But this could change if the demand is sufficient. Trials taking place In Wales will be included in the UKCTG and some background information may be in Welsh There are guidelines in place to ensure that participants who may have difficulties in understanding English are not disadvantaged from taking part.